Federal Programs Supporting Research and Training in Intellectual Disability

Before the 1960s, private agencies and federal and state governments showed little interest in services for individuals with ID. The prevailing attitude was that individuals with ID did not benefit from such services (Matthews, 1957, 1971; Perkins, 1971; West, Kennedy, & Carr, 1947).

During the administrations of Presidents John Fitzgerald Kennedy and Lyndon Baines Johnson (1960–1968), legislation leading to deinstitutionalization and federal support for research and training in ID reflected a change in attitude toward the role of individuals with ID in society and a recognition of the rights and potential of individuals with ID.

As perceptions changed, legislation and philanthropic foundations provided funds to explore the needs, nature, and suitability of services for individuals with ID.

The following critical federal programs began funding research and training on mental retardation and developmental disabilities in the early 1960s.

Federal Programs Funding

Bureau of Education for the Handicapped (BEH; authorized by Congress within the Department of Health, Education, and Welfare, 1967)

[Now Office of Special Education Programs (OSEP; U.S. Department of Education)]

Office of Special Education and Rehabilitation Services (OSERS; U.S. Department of Education)

Allocates funding to the states to develop and provide educational programs for individuals with handicaps.

Association of University Centers on Disabilities (AUCD; formerly the American Association of University Affiliated Programs for Persons With Developmental Disabilities)

Provides funding to promote and support a national network of university centers on disabilities in preparing personnel to conduct and disseminate quality research in ID. Network members include:

  • Intellectual and Developmental Disabilities Research Centers (IDDRCs; 1963)
  • University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDDs; 1963)

Leadership Education in Neurodevelopmental and Related Disabilities (LEND; established by the Maternal and Child Health Bureau, 1993)

Provides funding for the following activities:

  • Long-term, graduate-level interdisciplinary training to health professionals
  • Development of leadership potential to improve the health status of infants, children, and adolescents with or at risk for neurodevelopmental and related disabilities
  • Enhancement of systems of care for these children and their families

References

Matthews, J. (1957). Speech problems of the mentally retarded. In L. E. Travis (Ed.), Handbook of speech pathology (pp. 531551). New York, NY: Appleton-Century-Crofts.

Matthews, J. (1971). Communication disorders in the mentally retarded. In L. E. Travis (Ed.), Handbook of speech pathology and audiology (pp. 801–818). New York, NY: Appleton-Century-Crofts.

Perkins, W. (1971). Speech pathology: An applied behavioral science. St. Louis, MO: Mosby.

West, R., Kennedy, L., & Carr, A. (1947). The rehabilitation of speech. Oxford, England: Harper.

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