The National Joint Committee for the Communication Needs of Persons With Severe Disabilities (NJC) advocates for individuals with significant communication support needs resulting from intellectual disability, that may coexist with autism, sensory and/or motor limitation. The NJC is made up of representatives from eight member organizations, and focuses on research, policy, practice, and education.
This video was developed specifically to encourage students and practitioners to think about the particular challenges faced by individuals with severe disabilities across the lifespan. The NJC members would like to thank the Catherine Brewer Smith Professorship at Western Carolina University for its generous support of this project.
Below you will find questions and resources that each member has provided to facilitate conversation and extend study on each topic. Use the video in its entirety, or choose selected topics for study and discussion. Time stamps are provided after the title of each section for your convenience.
Diane Paul, ASHA Staff/Ex Officio
Brady, N. C., Bruce, S., Goldman, A., Erickson, K., Mineo, B., Ogletree, B. T., Paul, D., Romski, M., Sevcik, R., Siegel, E. Schoonover, J., Snell, M., Sylvester, L., & Wilkinson, K. (2016). Communication services and supports for individuals with severe disabilities: Guidance for assessment and intervention. American Journal on Intellectual and Developmental Disabilities, 121(2), 121–138.
Susan Bruce, DCDD (CEC) Representative
Bruce, S. & Ivy, S. (2017). Severe and multiple disabilities. In J. M. Kauffman & D. P. Hallahan (Eds.), Handbook of special education, Second Edition. (pp. 411–427). New York: Routledge.
Shevin, M. & Klein, N. K. (2004). The importance of choice-making for students with severe disabilities. Research & Practice for Persons with Severe Disabilities, 29, 161–168.
Wood, W. M., Fowler, C. H., Uphold, N., & Test, D. W. (2005). A review of self-determination interventions with individuals with severe disabilities. Research & Practice for Persons with Severe Disabilities, 30, 121–146.
Amy Goldman, USAAC Representative
Hamm, B., & Mirenda, P. (2006). Post-school quality of life for individuals with developmental disabilities who use AAC. Augmentative and Alternative Communication, 22, 134–147.
Kennedy, P. (2010). Navigating through transition with individuals with speech disabilities. Perspectives on Augmentative and Alternative Communication, 19, 44–50.
McNaughton, D.B., & Beukelman, D.R. (Eds.). (2010). Transition Strategies for Adolescents and Young Adults Who Use AAC. Baltimore: Brookes Publishing Company.
Andrea Barton-Hulsey, ASHA Representative
Cheslock, M., Barton-Hulsey, A., Romski, M. A., & Sevcik, R. A. (2008). Using a speech generating device to enhance communicative abilities and interactions for an adult with moderate intellectual disability: A case report. Intellectual and Developmental Disabilities, 46, 376–386.
Karen Erickson, TASH Representative
Erickson, K. A. (2017). Comprehensive literacy instruction, interprofessional collaborative practice, and students with severe disabilities. American Journal of Speech Language Pathology, 26, 193–205.
Erickson, K. A., & Koppenhaver, D. A. (2020). Literacy for All: Teaching Students with Significant Disabilities to Read and Write. Baltimore, MD: Brookes.
Koppenhaver, D. (2000). Literacy in AAC: What should be written on the envelope we push? Augmentative and Alternative Communication, 16, 270–279.
Mari Therrien, APTA Representative
American Speech-Language-Hearing Association (n.d.). Augmentative and alternative communication (Practice Portal).
American Speech-Language-Hearing Association (n.d.). Early intervention. (Practice Portal).
American Speech-Language-Hearing Association (n.d.). Interprofessional education/Interprofessional practice (IPE/IPP).
Beth Mineo, ATAP
Rowland, C. (2011). Using the communication matrix to assess expressive skills in early communicators. Communication Disorders Quarterly, 32, 190-201.
MaryAnn Romski, AAIDD Representative & Rose A. Sevcik, USSAAC Representative
Romski, M.A., Sevcik, R.A., Adamson, L.B., Cheslock, M.A., Smith, A., Barker, R.M., & Bakeman, R. (2010). Randomized comparison augmented and non-augmented language intervention for toddlers with developmental delays and their parents. Journal of Speech, Language, and Hearing Research, 53, 350–364.
Romski, M.A., & Sevcik, R.A. (2005). Augmentative communication and early intervention: Myths and realities. Infants and Young Children, 18, 174–185.
Sevcik, R. A. & Romski, M. A. (Eds.) (2016). Communication Interventions for Individuals with Severe Disabilities: Exploring Research Challenges and Opportunities. Baltimore, MD: Paul H. Brookes.