Growing Up with AAC
by Tracy Rackensperger
I was born with cerebral palsy, which significantly
impairs my motor skills and my speech intelligibility. I use
an electric wheelchair and an augmentative communication device.
I have always used direct selection to access all of my
devices.
I just graduated from the University of Central Florida, where I
received a bachelor's in radio-television. I plan on going to
graduate school in the spring to study communication. My career
goal is to become a motivational speaker and deal with issues
concerning communication and disability.
My family has always been supportive of augmentative
communication, and so was the school system. I have been
mainstreamed since I was in the fourth grade and have had a way of
communicating throughout my schooling.
I was one of the few people introduced to augmentative
communication at a very young age. When I was about three years
old, my speech-language pathologist (SLP) taught me Blissymbols,
visual-graphic symbols that represent words. The Blissymbols were
laid out on a board in categories such as verbs, prepositions,
adjectives, and nouns. The board was made of cardboard and cloth
and had a plastic covering. Symbols were pasted on the cardboard
and had the equivalent English words above the symbol. I pointed to
the symbols, which was time consuming. This system served two
purposes. First, it allowed me to communicate with people who could
not understand my speech very well. Second, because the board was
organized by word class, it aided my learning of English.
The board quickly became cumbersome, and proved too limited for
my communication needs by the time I was about five or six years
old. I had an expanding vocabulary, and the communication board was
not designed to handle large numbers of symbols. To this day, my
dad insists I was reading the words under the new symbols because I
was learning symbols very fast-faster than anyone my SLP had worked
with before.
Shortly before my board went into retirement when I was about
six years old, I had a communication assessment. The county where I
attended school had their own assessment center. The center had the
latest augmentative communication and assistive technology devices.
A group of physical, occupational, and SLPs assessed my
augmentative communication needs.
We settled on a device called a TouchTalker made by the Prentke
Romich Company. It had Echo Speech. Remember Echo Speech? It was
the first voice synthesizer augmentative communication devices had,
and it was not very clear. The TouchTalker came with Minspeak.
Minspeak allowed me to preprogram messages under icon sequences. At
this time, there was no such software program as Word Strategy or
Unity. These software programs were not invented yet.
I worked with SLPs to develop skills to use my augmentative
communication device. They taught me how to use icon sequences and
about icon representation. However, I worked with them on improving
my verbal skills as well. I have seen the speech-language pathology
field change to put a lot more emphasis on augmentative
communication-but little or none on improving a person's own
verbal capabilities. This is not good because it makes a person
totally dependent on technology and in some communication
situations, augmentative communication is not needed because the
person's communicative partner understands the individual's
speech. What if the device breaks down? I had no problems with my
TouchTalker. However, it definitely helped that I had my own
natural speech because sometimes I had to take my device off my
wheelchair in order to do things like use a computer and
participate in sports. In those situations, I had to use my natural
speech to communicate with people.
I have to admit that until very recently, my devices were almost
always in spell or word prediction mode. When I had my TouchTalker,
I did not realize the power of Minspeak. I liked the flexibility of
spelling out messages. I would put in Minspeak things like:
"My name is Tracy Rackensperger," "How are
you?", "I am having a good day," "What's
up?", etc. Yet I spelled out a lot of words.
I loved my TouchTalker. It really worked for me. In fact, I used
the TouchTalker for a little less than 10 years. The main reason my
family and I decided a new device was needed was because DecTalk,
which is more intelligible speech software, was easier to
understand and I was ready for a change.
In high school I was reevaluated, and it was decided that I
really needed a new device. Since I was so used to spelling out
words, they recommended a totally new device, a DynaVox. This
device had word prediction and had computer-like functions, which I
liked very much. For example, messages were categorized in folders.
I had a personal folder with such things as my name, address, and
phone number. Still, I used word prediction a lot. Word prediction
is faster than spelling but not as fast as preprogrammed messages.
Unfortunately, this device did not work for me. I used the DynaVox
for about five years, though, before I found funding for something
else.
Now I am back to a Minspeak-based device. Vocational
rehabilitation is paying for a Pathfinder. So far, I like it! I am
trying to use Unity and break my old habit of spelling all words
out. Unity is a good software program. I like the flexibility of
the program.
Throughout my school years and now beyond, I use augmentative
communication to communicate with people who have difficulty
understanding my own natural speech. People who have known me for a
while can understand my natural speech almost all the time.
Strangers usually have no clue what I am saying unless I use
augmentative communication. I have used these devices to interact
with teachers, classmates, employers, coworkers, strangers and
friends. I am using augmentative communication more and more to
give presentations, spread ideas, and help others who have
developmental disabilities. I want to serve as a role model for
others with significant disabilities and tell them how I achieved
success.
I am now involved in the self-advocacy movement, which promotes
individuals with disabilities to make their own decisions based on
their preferences and to be self-determined. My augmentative
communication device allows me to participate in conferences and
meetings. So far, I have attended conferences in Rhode Island and
Georgia, a leadership project in Washington, DC, and I have given
presentations to the Florida Developmental Disabilities Council and
at a conference in Fort Lauderdale, FL.
. . . . . . .
. . .
Tracy Rackensperger
, age 23, lives in Central Florida with her parents and sister. She
can be reached by e-mail at
tdoggog@aol.com
and
has her own Web
site
.