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Learn More About Fragile X Syndrome

see also: Feature l Common Signs

Web Sites

National Fragile X Foundation: www.fragilex.org

FRAXA: www.fraxa.org

ARC Description of fragile X syndrome: www.thearc.org/pdf/gbr05.pdf

Carolina Fragile X Project: www.fpg.unc.edu/~FX/

 

Books and Articles

Abbeduto, L., & Hagerman, R. (1997). Language and communication in fragile X syndrome. Mental Retardation and Developmental Disabilities Research Reviews, 3, 313–322.

Abbeduto, L., Murphy, M. M., Cawthon, S. W., Richmond, E. K., Weissman, M. D., Karadottir, S., & O’Brien, A. (2003). Receptive language skills of adolescents and young adults with Down syndrome or fragile X syndrome. American Journal on Mental Retardation, 108, 149–160.

Hagerman, R. J., & Hagerman, P. J. (2002). Fragile X syndrome: Diagnosis, treatment, and research, 3rd ed. Baltimore, MD: Johns Hopkins Press.

Mazzocco, M. (2000). Advances in research on the fragile X syndrome. Mental Retardation and Developmental Disabilities Research Reviews, 6, 96–106.

Rogers, S. J., Wehner, E. A., & Hagerman, R. J. (2001). The behavioral phenotype in fragile X: Symptoms of autism in very young children with fragile X syndrome, idiopathic autism, and other developmental disorders. Journal of Developmental and Behavioral Pediatrics, 22, 409–417.

Sudhalter, V., & Belser, R. C. (2001). Conversational characteristics of children with Fragile X syndrome: Tangential language. American Journal on Mental Retardation, 106, 389–400.

U. S. Department of Health and Human Services, National Institute of Child Health and Human Development. (2003). Families and fragile X syndrome. (For a copy, e-mail NICHDInformationResourceCenter@mail.nih.gov or call 800-370-2943.)

Weber, J. (2000). Children with fragile X syndrome: A parent’s guide. Bethesda, MD: Woodbine House.

 



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